Tagged: FYBF

10

Testing Times

It’s been a tough week. Actually, it’s been a tough few weeks which has culminated in this crazy motherf***er of a week. Yes, I virtually swore then. That probably best highlights just how overwhelmed...

5

Oh Happy Day

If you had been following any of my social media accounts today you would have seen my proud pictures and posts about my boy receiving an award at his school’s presentation day. Now, if...

11

Demystifying Albinism: Shades of Pale

Many people don’t understand that albinism is not just a single condition. There are many forms of albinism – the term itself is actually a broad description of several inherited conditions, all characterised by...

31

Not Quite Right

I’m not quite right. I’m better than what I was. There’s not so much crying and the sense of panic I felt most days has eased. That’s got to be a good thing, right?...

16

Advocacy 101

As a parent there is one job that comes with the gig that can sometimes be very daunting. And it can be even more daunting when you are dealing with children with additional needs....

6

I Support the NDIS – Do You?

Did you know that it can take up to 2 years to access a government funded wheelchair? Did you know that it took 12 months before the relevant agency organised for an accessible door...

18

What He Sees

I dubbed today “vision day” as it involved a trip to the opthalmologist for Gilbert’s regular check-up, followed by a visual scanning training session with Vision Australia. The day didn’t get off to a...