Albinism Resources

Are you new to albinism and looking for information and albinism resources?

I know how confused and uninformed I felt when we first received Gilbert’s diagnosis. I also remember how hard it was to find information at all, let alone information I could trust.

With a global prevalence of only 1 in 20,000, it’s probably no surprise that albinism is so little understood.

To help you, I’ve put together some links to resources I’ve come across over the years, including links to various pages, support groups and websites. Hopefully these links will help you find all you need to know about albinism.

You can also check out my albinism page for more information plus links to my own posts on albinism, from the perspective of a parent.

albinism resources -

Support Organisations

Albinism Fellowship of Australia

National Organization for Albinism & Hypopigmentation

Albinism Fellowship UK & Ireland

World Albinism Alliance

Under the Same Sun

OHCHR – United Nations

Support Pages

Albinism Support Group

The Albinism Alliance Group (TAAG)

Albinism Community

Albinism Friends

Albinism Fellowship of Australia

Websites & Blogs


Positive Exposure


Louise & Albinism

Parent of a Child with Albinism

The Will to See

A Few More Steps

Through Liam’s Eyes

Hey There April

JD Dalton

Jennifer Nichols

Albinism Fellowship

Blonde Whimsy

Chronicles of a Crafty Blind Chick

Crafty Blind Chick


If you still have any questions or are looking for more albinism resources, please contact me directly at

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