Get the kettle on for Epilepsy!

I love my cups of tea. Never coffee, just tea (or hot chocolate for special occasions!) I like it strong, hot and with milk. It’s one of my little pleasures and I have a collection of go-to teapots and cups just for this purpose…

My collection of tea pots and cups - www.myhometruths.com

You can probably guess I don’t REALLY need an excuse to pop the kettle on and indulge in a bit of me time with my favourite English Breakfast brew.

However, I do have a great excuse for having as many tea breaks as possible during November in support of E-Tea, a nationwide community fundraising initiative to raise funds and awareness for epilepsy. In the past I have supported the cause by wearing purple for Purple Day to raise awareness of the condition. Now, November is epilepsy awareness month, and I’m ready to further support a cause very close to my heart.

Why is this cause so special to me? Some of you may not know that I was diagnosed with simple partial seizures (temporal lobe epilepsy) back in 2001. It came out of nowhere and ruled my life for 18 months. I wasn’t allowed to drive, I had to undergo a myriad of tests, I had to go home from work early on multiple occasions after suffering a seizure and I felt my whole life was out of control. There was no explanation for the onset of symptoms – my epilepsy literally came out of nowhere – and I felt confused and alone.

Luckily my epilepsy was able to be controlled and I’ve now been seizure free since 2003 (I know that sounds like a political slogan, but it’s true!) However, I have friends who have also been diagnosed with epilepsy and unfortunately some of them have continued to struggle with seizures over a long period of time. It can be debilitating, seriously affect your quality of life and leave people feeling vulnerable and unable to live life to the full.

You may be surprised to know that epilepsy is the world’s most common serious brain disorder. An estimated 65 million people across the globe are currently diagnosed – in Australia alone it is estimated that over 250,000 Australians are currently living with the condition. In fact, epilepsy is more than three times as common as multiple sclerosis, Parkinson’s disease and cerebral palsy. However, it’s still so little understood.

Many people think of epilepsy as the stereotypical convulsing grand mal (tonic clonic) seizure. However, epilepsy comes in many different forms. And whether the seizure is visible to others or not, the after-effects are still devastating. I can still remember the weight of exhaustion that would follow one of my simple partial seizures. Anyone around me would not have a clue that I had just had a seizure but they could soon see I was incapable of doing anything else as my body attempted to recover from it.

That’s why it’s so important to normalise epilepsy, address the stigma and help raise funds and awareness to help those still struggling to control the condition.

This is why I love the idea of the E-Tea. What better way to spread awareness and fight stigma than getting friends, colleagues or family together to share morning or afternoon tea and learning a little bit more about epilepsy in the process?

e-tea for epilepsy - www.myhometruths.com

image source

To get your fundraising off to a great start, Epilepsy Action Australia are giving away free goodie packs containing lots of delicious treats and baking supplies, as well as tea and coffee samples to anyone who registers to hold an E-Tea event. Once you’ve registered your event, you’ll also be given access to information and resources to make your E-Tea fun, engaging and memorable – including posters, decorations, and games.

Not only can you help play a pivotal role in bringing epilepsy out of the shadows, but you can help to raise vital funds for Australian families whose lives have been impacted by an unpredictable and often highly distressing condition.

It’s not too late to take part! Order your FREE E-Tea starter pack today by visiting www.epilepsy.org.au or calling Epilepsy Action Australia on 1300 37 45 37.

Put the kettle on for epilepsy - www.myhometruths.com

Disclaimer: I have received no compensation for this post. I wanted to take part in promoting this initiative as epilepsy has personally affected me and I know it affects so many other families, both here in Australia, and internationally.

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8 Responses

  1. Wow. I did not know that had affected you. I know something about epilepsy based on family/friend experiences and also that it can come in many forms. Thanks for sharing this initiative.

  2. Nice post! and yay on seizure free!

  3. Vanessa says:

    After going on flea tablets (instead of flea drops like pets used to have) my dog started having grand mal seziures (a side effect people aren’t told about). She could feel them coming on and would stick to us like glue if she was with us. The hardest time was when she had a 10 minute long seizure that started outside; she was distressed and our screen door opens outwards, so I had to (somehow, I have no idea) convince a stressed, imminently pre-seizure dog (her legs were already barely working) to stop trying to get to us and to step backwards so I could let her in and keep her safe during the seizure. Thankfully, phenobarb has controlled them well for her and we don’t think she’s had another since being on the tablets, but she’ll be on it forever, which comes with its own risks. She’s a resilient dog though; she would jump straight for a toy right after it happened and I think we got more traumatised than she did.
    Vanessa recently posted..Introducing #ArchiveLove – a link up for all bloggers

  4. I love your collection of Teapots! I want to start collecting some but probably will start once I have settled down so I don’t have to worry about moving and the breaking. Do you know if there is an E-Tea program in the United States?
    Everyday Joey recently posted..What I am Thankful For So Far This November

  5. My niece has epilepsy. When she was a small child she used to blink uncontrollably in sunlight – turned out to be petit mal seizures. She’s now 25, but sadly can never drive.

  6. That’s so great you are now seizure free. We have someone in the family with epilepsy, and it’s been quite debilitating for them. This is such a good cause. I didn’t realise it was so prevalent.

  7. Ness says:

    I did not know that about you. That’s interesting because my brother had a serious car accident a few years ago. It turned out that he had epilepsy and had had a seizure at the wheel. I’m not sure what type his is, but he still currently unable to drive. I’m just wondering about the possible link between epilepsy and autism. I’ve heard there is one, but I’d never taken much notice… Anyway this sounds like such a great cause and I’m so glad you’ve been seizure free for so long. Yay!

  8. I had a friend who couldn’t drive because of her epilepsy. I never asked her about it, she seems to lead a pretty normal life and have never saw her have a seizure.
    In Yr 9 we had an epileptic in our homeroom and right from the start of the year, we were taught what to do if he had one. He did. It was confronting at first, but we knew to clear the space around him and put him on his side to keep him safe.
    Such a common condition, yet I had no idea it was Epilepsy awareness month.

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