It’s Purple Day Today!
Today is Purple Day. What is Purple Day, I hear you ask?
It is an international day to raise awareness and understanding of epilepsy, a condition that affects over 185,000 Australians.
I have a personal reason to support Purple Day as I was diagnosed with simple partial seizures (temporal lobe epilepsy) in 2001.
My seizures were subtle – often no-one else would be aware I was having one. I’d have some sort of “vision” beforehand, a feeling of dejavu and then I would grow hot, the heat slowly creeping in a crescendo from my arms and legs to my very core.
I would lose focus as there was no way I could concentrate while I felt as if I was going to pass out when that feeling of heat finally consumed me. Then, as soon as it came on, it would be over.
I never did pass out but I cannot even come close to describing the sheer exhaustion I would feel afterwards.
Each seizure was truly debilitating. If I was at work or away from home, I would need to go home straight away to sleep it off.
For the first 3 months after my diagnosis I was not allowed to drive. I had to rely on others to transport me anywhere – it was inconvenient and, to be honest, humiliating.
But, obviously a very necessary precaution as there was no guarantee that I would not have a seizure behind the wheel.
Eventually, after trying 3 different medications and fiddling with dosage, my epilepsy was brought under control and I have now been seizure free since 2003.
I am lucky. My epilepsy was able to be controlled but for many others this is just a dream.
I cannot even begin to imagine what it would be like to deal with uncontrollable seizures on a daily basis. But for many people with epilepsy that is their reality.
That’s why I choose to support Purple Day. To increase awareness and understanding of the condition and raise funds for research into new treatments to help those whose epilepsy is yet to be controlled.
So, if you can, proudly wear purple as I am today and spread the word that epilepsy is not something to fear or be ashamed of.
You could very well make a real difference to those who suffer seizures on a daily basis.
Here’s some links that explain the condition and the drive behind Purple Day far better than I ever could!
Happy Purple Day everyone!
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